Every day, Patricia Johnsen works to balance Type 1 Diabetes and –most recently — celiac disease with the challenge of training for the Ironman Triathlon. From her discovery of celiac to managing the two during major competition see how she’s been able to balance a healthy life.

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January 21st, 2009

The Girl Scouts organization really is great with teaching girls values, community and service, but when it comes to the cookie thing — the fact that there are no gluten-free cookies brings annual frustration for me, albeit brief.

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January 20th, 2009

Last night I got back from our big annual meeting for the Raising our Celiac Kids Twin Cities Chapter and I left ready for action: inspired, energized and ready to “keep up the good fight”!  And — no — I didn’t feel this way because yesterday (Martin Luther King, Jr. Day) was a national day of service.  But just seeing and talking with all of these people who are deeply involved in the same celiac issues gets my blood pumping; and I’m ready to see what else I can do to help. I leave meetings like that the way I leave the gym after a good workout! Making Time for Your Cause Because I invest a lot of time and effort into our annual Making Tracks for Celiacs fundraiser walk/run, I have, in the past, tuned out other volunteer opportunities or events because I’m a bit spent. But tonight I found my mind going – there were so many events to get involved in within our group: Gluten-Free Fun Camp, Summer Picnic, plus new “breaking” opportunities involving gluten-free product testing. But also other opportunities with committees that stress awareness like our education and website committees. What to do? I am […]

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January 15th, 2009

Want to get on the Twitter bandwagon with regards to celiac disease and the gluten-diet? Here are some good feeds to get you started– because I’ve found it’s hard to find people on Twitter…you too?

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January 8th, 2009

Nag…nag…nag. That’s not what I want to be. But when I see someone who’s clearly sick and I think their problems could be symptoms of celiac disease, I tell them. But how much information is too much and you’re considered a nag?

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You’ve heard about our adventure hosting an exchange student with celiac disease. Now I’ve learned of another young lady with celiac disease who also wants to come here for next school year. Interested? Read on….

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The gluten-free diet made a list of trends for 2009. Is that good or bad for the celiac community?

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New research is out on the relationship between anemia and celiac disease.

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Proof to never let your gluten-free guard down. Just when you thought it was safe to judge food from the gluten-free identifier on the shelf, think again. This luxury of a gluten-free product sticker on the shelf, identifying gluten-free items, was incorrect for the first time I’ve ever seen; incorrectly marking a product that had wheat — as gluten-free.

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December 21st, 2008

A great idea for a last-minute gift for the celiac in your life!

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