It sounds harsh, but I’m feeling that way as I write this post. I’m sure you could take the term “celiac nag” in many ways: someone who nags about the gluten-free diet is one thought, but that’s not me in this case. I know someone with a very sick child. I think he has celiac and have shared this with his mother. But how much celiac talk is too much – before you’re considered a celiac nag?
The family is doing many things to get him checked out. Despite a diagnosis of Crohn’s disease and some medicine to help treat it, he continues to have massive stomach pain, fatigue, constipation-diarrhea combo and weight loss. The family hasn’t ruled out celiac disease, but after running several recent tests including a biopsy “during a colonoscopy… at the area where the large and small intestines meet” (because small intestine was too inflamed to get into) the doctor doesn’t think it’s celiac. But honestly can you get a good biopsy sample there? According to the University of Chicago’s Celiac Disease Center, “Biopsy of the small intestine is the only way to diagnose celiac disease.”
I did my best to email this person (twice) and educate her about celiac and do it from the heart. I found that there is a Mayo Clinic not far from her home so she can get a second opinion and explained the range of symptoms. She was receptive to the first email and I have every reason to think she will be receptive to my second one. I just don’t want to NOT say something and have a young teenager go on doubled over in pain when I could have done or said something about it. I just pray that this young man gets the correct diagnosis and starts feeling better.
I am curious what readers think. Have you ever felt torn like this? I would love to hear how you have handled similar situations and walked the fine line of being informative versus a nag.